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OT: Post Concussion Syndrome ... getting worse....
Posted by: cbelt3
Date: December 18, 2014 09:10AM
I think I need to go back to the company doctor. 13 years after my traumatic near death experience (at work, slipped and fell, died, coma, etc..)....

I'm becoming much more forgetful in the last few years. To the point that it's completely affecting my work, family, life in general.
My emotions are really hard to control. Mood swings, etc.
I get 'lost' in my head so easily, and lose focus SO incredibly easily.

I'd hoped that all this stuff would get better, but it's getting worse and worse and worse. Is this normal ? If it gets much worse years from now I'm going to have to make an appointment with a .44 . I don't want to leave my wife having to take care of a veggie me.
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Re: OT: Post Concussion Syndrome ... getting worse....
Posted by: mattkime
Date: December 18, 2014 09:23AM
very sorry to hear this. hope you can get the help that you need.



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Re: OT: Post Concussion Syndrome ... getting worse....
Posted by: cbelt3
Date: December 18, 2014 09:32AM
Quote
mattkime
very sorry to hear this. hope you can get the help that you need.

Just sent an email to the company specialist. It's easier for me to type than to talk about this stuff.... I tear up and start sobbing. Some days I have all the emotional control of a 12 year old girl at a One Direction concert.
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Re: OT: Post Concussion Syndrome ... getting worse....
Posted by: mattkime
Date: December 18, 2014 09:35AM
>>Some days I have all the emotional control of a 12 year old girl at a One Direction concert.

I am glad to hear that your sense of humor remains.



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Re: OT: Post Concussion Syndrome ... getting worse....
Posted by: Mike Johnson
Date: December 18, 2014 09:38AM
You don’t mention depression, but that would be my immediate concern. You and your family should be talking to somebody. Really, you should see an old school psychiatrist, the kind who does more than reach for the prescription pad, but they don’t make those any more.

Depression lies. I’m not saying that it’s all depression, that you’re not actually having problems or that they’re not getting worse. I’m sure you’re having neurological issues, which is why I suggested a psychiatrist, not a psychologist. But it’s likely that depression would be one of your symptoms, and it would a, make the other effects more pronounced, and b, cloud your judgment.

Hang in there, look for coping strategies, and let other people help you.
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Re: OT: Post Concussion Syndrome ... getting worse....
Posted by: cbelt3
Date: December 18, 2014 09:48AM
Mike - yeah, I'm under treatment for depression. One of the main 'hidden symptoms' of a TBI. I *should* have engaged workman's comp for it.... there IS a family genetic heritage of depression, so I thought it might be that.
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Re: OT: Post Concussion Syndrome ... getting worse....
Posted by: cbelt3
Date: December 18, 2014 09:48AM
Quote
mattkime
>>Some days I have all the emotional control of a 12 year old girl at a One Direction concert.

I am glad to hear that your sense of humor remains.

Comes and goes, but it's been consistently absurd !
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Re: OT: Post Concussion Syndrome ... getting worse....
Posted by: mattkime
Date: December 18, 2014 10:06AM
Can you find other people dealing with these issues? "support group" sounds kinda creepy but having friends fighting similar battles can be extremely helpful.
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Re: OT: Post Concussion Syndrome ... getting worse....
Posted by: DP
Date: December 18, 2014 10:28AM
I'm glad you're recognizing that you have issues. Yes, by all means, get help. But get some CAT Scans, MRI's, whatever it takes to see if something physical may be manifesting itself too. Something physical that's changed in your head over the years could be acting up.
Good luck and prayers go out your way....
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Re: OT: Post Concussion Syndrome ... getting worse....
Posted by: freeradical
Date: December 18, 2014 10:38AM
Sorry to hear about your problems. I hope you get what you need from your doctors.
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Re: OT: Post Concussion Syndrome ... getting worse....
Posted by: rich in distress
Date: December 18, 2014 10:55AM
Go see your Doctor ASAP.
I would go with someone from my family, because sometimes the patient may skip some symptoms that are valuable for professional consideration.
You have the support of all the people here in the forum, but if I were in your shoes, I'd keep an eye that the back and forth is not creating additional anxiety.
Go see your Doctor ASAP.

Best wishes!



• back to confinement


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Re: OT: Post Concussion Syndrome ... getting worse....
Posted by: cbelt3
Date: December 18, 2014 11:03AM
Dp--
Sadly MRI's and the ilk are not allowed. Stainless steel plate and miscellaneous iron mongery in my shoulder means 'no'. Of course there are always drills and saws..... startrek 16
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Re: OT: Post Concussion Syndrome ... getting worse....
Posted by: billb
Date: December 18, 2014 11:18AM
I've heard when it gets really bad you start buying people cars .....



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Re: OT: Post Concussion Syndrome ... getting worse....
Posted by: cbelt3
Date: December 18, 2014 11:34AM
Quote
billb
I've heard when it gets really bad you start buying people cars .....
heh...
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Re: OT: Post Concussion Syndrome ... getting worse....
Posted by: Rick-o
Date: December 18, 2014 11:34AM
Sorry you are having some issues as of late. Let's hope you can get a handle on things and return to a more positive frame of mind.

That said, you may want to refrain from statements like this:

"If it gets much worse years from now I'm going to have to make an appointment with a .44 . I don't want to leave my wife having to take care of a veggie me."

Not something you should broadcast to the world via the 'net, IMO. The wrong people might see it and use it against you.



Mr. Lahey: A lot of people, don’t know how to drink. They drink against the grain of the liquor. And when you drink against the grain of the liquor? You lose.

Randy: What the @#$%& are you talking about?
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Re: OT: Post Concussion Syndrome ... getting worse....
Posted by: GuyGene
Date: December 18, 2014 11:51AM
I feel for ye cbelt. I've suffered off and on from bouts of depression for many years. I finally learned that I've had fibromyalgia for over 35 years, but didn't know wha' it was until 3 years ago. They gave me generic cymbalta to treat fibromyalgia pain, and of course, I reckon it helps the depression a bit too. Fibromyalgia can be cause by a traumatic event, so you might have that too. I think it would be worth mentioning that to ye doc, and nurse practitioner! It was a nurse practitioner who put me on to fibromyalgia. I think it has to do with the age of me doc. She's over 50, and I suspect the older docs might not be as up to date of something as weird as fibromyalgia mess.

Hoping ye do well.



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Re: OT: Post Concussion Syndrome ... getting worse....
Posted by: Dennis R
Date: December 18, 2014 12:09PM
You know you have been under a lot of stress lately and that can certainly mess with your mind.
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Re: OT: Post Concussion Syndrome ... getting worse....
Posted by: $tevie
Date: December 18, 2014 12:13PM
Quote
cbelt3
Mike - yeah, I'm under treatment for depression. One of the main 'hidden symptoms' of a TBI. I *should* have engaged workman's comp for it.... there IS a family genetic heritage of depression, so I thought it might be that.

I don't know what "treatment for depression" means and I don't need you to tell me. But I do believe that you need a doctor or nurse practitioner to step back and take a look at the big picture. Complete physical, blood work, and so forth, and a discussion of your various symptoms and current medications considered all together. If you've had all this done but by different professionals in different offices with no real oversight then there could be something that is being overlooked, even as simple as a drug interaction or being over-medicated or, well, you know what I mean.



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Re: OT: Post Concussion Syndrome ... getting worse....
Posted by: Kraniac
Date: December 18, 2014 12:17PM
Dude C,

So sorry to hear about this. You're probably sick of well wishing and good luck and calls for perseverance..but it's all I can offer. I sincerely hope you find some way to deal with this.
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Re: OT: Post Concussion Syndrome ... getting worse....
Posted by: Uncle Wig
Date: December 18, 2014 12:45PM
Hang in there Cbelt!

Depression is the worst. I hope you can get some relief, and I hope the stressful events in your life calm down.



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Re: OT: Post Concussion Syndrome ... getting worse....
Posted by: N-OS X-tasy!
Date: December 18, 2014 12:59PM
Quote
cbelt3
Some days I have all the emotional control of a 12 year old girl at a One Direction concert.

Not to make light of your situation... but that right there is sig material. grinning smiley



It is what it is.



Edited 1 time(s). Last edit at 12/18/2014 12:59PM by N-OS X-tasy!.
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Re: OT: Post Concussion Syndrome ... getting worse....
Posted by: Spock
Date: December 18, 2014 01:01PM
Quote
cbelt3
... If it gets much worse years from now I'm going to have to make an appointment with a .44 . I don't want to leave my wife having to take care of a veggie me.

You don't use MS Office at work do you ...





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Re: OT: Post Concussion Syndrome ... getting worse....
Posted by: Black
Date: December 18, 2014 01:44PM
Age related changes can certainly amplify your brain injury-related deficits. There's really nothing you do any differently than anyone else looking to stay functional as the years advance. Exercise is probably number one-- you've mentioned that your weight is not what you'd like it to be, and there's research out the wazoo supporting the positive relationship between daily exercise and mental acuity.
Not sure about this "company doc"- not 100% that they have your best interests at heart. I'd ask around for a good neuropsychologist and try to get a referral. Joe psychiatrist or Joe psychologist may not have the necessary experience with brain injury to do much more than suck up your insurance money.




New forum user map 8/2015: [www.zeemaps.com]



Edited 1 time(s). Last edit at 12/18/2014 01:44PM by Black.
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Re: OT: Post Concussion Syndrome ... getting worse....
Posted by: Black
Date: December 18, 2014 01:46PM
Quote
Spock
Quote
cbelt3
... If it gets much worse years from now I'm going to have to make an appointment with a .44 . I don't want to leave my wife having to take care of a veggie me.

You don't use MS Office at work do you ...






New forum user map 8/2015: [www.zeemaps.com]
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Re: OT: Post Concussion Syndrome ... getting worse....
Posted by: rgG
Date: December 18, 2014 01:47PM
Sounds like menopause, to me. smiley-shocked003

Seriously though, hope you do get some answers, and I agree that exercise can do you a world of good.





Roswell, GA (Atlanta suburb)
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Re: OT: Post Concussion Syndrome ... getting worse....
Posted by: DP
Date: December 18, 2014 03:04PM
Quote
cbelt3
Dp--
Sadly MRI's and the ilk are not allowed. Stainless steel plate and miscellaneous iron mongery in my shoulder means 'no'. Of course there are always drills and saws..... startrek 16

There has to be a way to take a physical picture. I think your physician should be able to come up with something for your situation. Maybe wrap a copper cable around your shoulder and add an electric charge to it to degauss it! Then it'll work in the MRI, right?
Seriously, it could be scarring from the trauma, or, God forbid, something worse that's changing your brain chemistry.
Keep us informed...
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Re: OT: Post Concussion Syndrome ... getting worse....
Posted by: cbelt3
Date: December 18, 2014 03:41PM
Thanks, all. Made a note to make a doctor's appointment after the holidays for a discussion. The TBI and workman's comp complicates it. I talked to the company nurse, and she suggested that, and gave me contact points inside the organization to get into the flow of claims and all that.

Oddly, this place is reasonably OK with handling comp claims.. they took good care of me when I had my initial injury and for therapy since then. Of course, I'm a guy, so I don't ask for help until it's too late...
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Re: OT: Post Concussion Syndrome ... getting worse....
Posted by: kanesa
Date: December 18, 2014 04:46PM
I think Black is right about seeing a neuropsychologist. You may need cognitive therapy. Exercise is really important for cognitive health as you grow older. It's one of the reasons I walk everyday.

Has someone told you can't have an MRI? I have 2 hip replacements and have several MRIs with no complications. I'm curious because sometimes people think they can't have an MRI because of the metal. Head plates might be something totally different than joint replacements.

I think you are doing the right thing by reaching out and looking for answers. There are people and therapies that can probably help you.
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Re: OT: Post Concussion Syndrome ... getting worse....
Posted by: Racer X
Date: December 18, 2014 05:39PM
Jeez, that sucks. When I was a kid, my mom's mom had cancer, and came to live with us. Shortly after she had a series of smallish strokes, and became demented. We lived with only part of her left for about a decade, and it was definately something the whole family struggled with, not just her.

I hope you and your family can cope with it, and it can be arrested and maybe reversed to any degree.
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Re: OT: Post Concussion Syndrome ... getting worse....
Posted by: stephen
Date: December 18, 2014 08:29PM
All your friends here wish you well.
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Re: OT: Post Concussion Syndrome ... getting worse....
Posted by: sekker
Date: December 18, 2014 08:30PM
Good luck! We all wish you the best.
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Re: OT: Post Concussion Syndrome ... getting worse....
Posted by: WillyB
Date: December 20, 2014 01:46AM
I feel for you cbelt. I've been there. You deserve to be happy. No matter how bad you feel keep seeking help even if you think that you can't afford it. Maybe you can keep working, maybe not. In your present state, standing still may actually be going downhill. I would see my PERSONAL physician and go forward from there. Recurrent depression seems to get worse with each bout (at least in my case). Contact an attorney to insure that your rights and adequate compensation can be made in order to make you WHOLE. If you don't regain your full health, being made whole has a monetary value established by the courts. I got lucky. The company that I worked for handled everything properly. I had a good and caring attorney that took my case right away. My attorney established my legal disability thereby enabling my enrollment into Medicare after the mandatory two year waiting period. My attorney was paid nothing because I had no back benefit coming. The road to recovery is still rocky but it's worth the fight and I am glad to be alive. My only regret was not signing up for full disability insurance when I had the chance. A pittance every payday could have granted me full salary for life instead of half salary. Money doesn't buy happiness but it can relieve some of life's stressors. I'm not a professional but feel free to PM me if you just need a different perspective or anything else for that matter. God bless you and yours.



Edited 1 time(s). Last edit at 12/20/2014 02:06AM by WillyB.
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