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Two words you never want to hear
Posted by: bazookaman
Date: October 13, 2016 08:02AM
Pediatric Surgeon.

A while back, my nine year old's knee started popping. We thought it was dislocating again like it had when she was involved in the "Trampoline Incident of 2015" but the ortho doc assured us it was just popping. Like you'd pop your knuckles. Except instead of two fingers bones it was her femur and tibia doing the popping.

So last week she had an MRI. She was a trooper. She did very well. The ortho confirmed that she had a discoid meniscus and recommended we see a pediatric surgeon to correct this. They couldn't do it there since none of their surgeons do this surgery on kids. So they referred us to a surgeon at Baptist Medical in the next town over.

Here's where it goes from "Crap, my daughter needs surgery" to "Crap, what a @#$%& up system this is". So my wife, my daughter and I all take off a half day from school and work to drive to our appt with the pediatric orthopedic surgeon. He takes ONE look at the MRI from across the room and says "Oh yeah. Classic discoid meniscus". From ACROSS THE ROOM!

He then proceeds to tell us that this type of surgery is fairly complex and he would only trust it to his colleague who is a sports med surgeon. Yes. We got referred to ANOTHER doctor. Who is the greatest. And owing to her greatness, it's impossible to get an appt anytime soon. So we have a December 7th appt. Just to SEE her. THEN we have to schedule surgery. We are now on a waiting list to see if we can get an earlier appt. So basically our holidays are shot b/c we have to wait by the phone just in case they call and give us an earlier appt.

It's frustrating b/c A) I really don't want to prolong my daughter's anxiety more than necessary. And B) our insurance renews in January. If we don't get this in this year, we are going to be royally @#$%& next year.

I just don't understand why our ortho couldn't email her MRI to the doc in the other town and he could then refer her to the other OTHER doc. I say email, but I mean some means of secure transmission. After all, I'm signed up for any number of medical sites that show me all my doctor visits and xrays and MRIs. We even had her MRI results on a CD.

Anyway.



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Re: Two words you never want to hear
Posted by: Speedy
Date: October 13, 2016 08:07AM
For kids, that's the way it is.



Saint Cloud, Minnesota, where the weather is wonderful even when it isn't.
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Re: Two words you never want to hear
Posted by: cbelt3
Date: October 13, 2016 08:27AM
Sorry to hear about it. It's pretty amazing that they will be able to fix the problem, and your daughter will grow up to be able to run and dance and have a great life.

Put the word "Pediatric" in front of any medical specialist and the number of practitioners drops by a factor of 10. Because the number of lawsuits and the cost of insurance increases by a factor of 10.
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Re: Two words you never want to hear
Posted by: bazookaman
Date: October 13, 2016 08:32AM
Quote
cbelt3
Put the word "Pediatric" in front of any medical specialist and the number of practitioners drops by a factor of 10. Because the number of lawsuits and the cost of insurance increases by a factor of 10.

And I totally get that. We were referred to this guy b/c he was a pediatric surgeon. And I embrace the fact that even he didn't feel comfortable performing the surgery. What bothers me is all the wasted time.



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Re: Two words you never want to hear
Posted by: Acer
Date: October 13, 2016 08:55AM
"That looks like skin cancer. Better see a dermatologist.
"Welcome to Ace Dermatology. The Doctor will see you in six months."
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Re: Two words you never want to hear
Posted by: rjmacs
Date: October 13, 2016 09:02AM
Quote
cbelt3
Put the word "Pediatric" in front of any medical specialist and the number of practitioners drops by a factor of 10. Because the number of lawsuits and the cost of insurance increases by a factor of 10.

There's also just fewer of the little buggers.... (kids, I mean)



rj
AKA
Vreemac, Moth of the Future




Edited 1 time(s). Last edit at 10/13/2016 09:03AM by rjmacs.
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Re: Two words you never want to hear
Posted by: OWC Larry
Date: October 13, 2016 09:04AM
having had a few injuries and and a broken arm amongst our kids in the last few years - one thing about anything with growing children are the growth plates and that stuff in general all growing. Frustrating for sure, but was not a bad thing that the doctor referred instead of doing the surgery if he honestly didn't think he was the best suited to do.

Mistakes that don't accommodate the growing that is still to come or interfere with the growing on one limb can create all sorts of havoc later.

While I think there are way too many lawsuits against medical providers in general, in this case I do believe pediatric medicine in this area really is more of a specialty. Easier to fix something that is static than something that is growing + when it also has to keep growing in sync with another limb too.

I feel for ya!



OWC Larry
Other World Computing
[www.macsales.com]
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Re: Two words you never want to hear
Posted by: raz
Date: October 13, 2016 09:05AM
As noted above, the way to get through this is to hold the notion that you've been hooked up with the best person in the area. Our medical system works absolute miracles.

We (well at least I) have all been through it. It will work out well in the end, and you'll be able to regale your listeners with the stories.

Best of luck.



--------------

Embarassing myself on the Internet since 1978.
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Re: Two words you never want to hear
Posted by: Kraniac
Date: October 13, 2016 09:38AM
Get a second opinion and do your diligence on the surgeon..how many of these has he done etc..

Knees are important..as you know

Good luck, Bazoo..been there and understand the fear this instills in parents..the kids are usually the coolest of the bunch..
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Re: Two words you never want to hear
Posted by: Ombligo
Date: October 13, 2016 10:38AM
Sorry to hear that, just do your homework and things will most likely be okay.

(For the record - three words no teacher ever wants to hear in class --- "My water broke")



“No persons are more frequently wrong, than those who will not admit they are wrong.”
-- François de La Rochefoucauld

Growing older is mandatory. Growing up is optional.
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Re: Two words you never want to hear
Posted by: davemchine
Date: October 13, 2016 11:23AM
I've found that if I'm willing to travel I can get procedures done much faster. In one case I turned a six week wait into 3 days. I'm not sure where you live but it may be something to consider. Best wishes to you and your daughter.



Ukulele music I couldn't find anywhere else
[colquhoun.info]
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Re: Two words you never want to hear
Posted by: testcase
Date: October 13, 2016 12:21PM
Now that an eminent surgeon has told you exactly WHAT surgery your daughter needs, start researching what other surgeons are well regarded for this specific procedure and see if, somewhere else, it can be arranged much sooner. I would expect that, with your permission, that MRI can be electronically transmitted wherever a top surgeon is located for his / her perusal.
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Re: Two words you never want to hear
Posted by: mrbigstuff
Date: October 13, 2016 12:26PM
In the meanwhile if she's in any discomfort, find a really good LMT. Someone practiced in that art can do amazing things.
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Re: Two words you never want to hear
Posted by: mikebw
Date: October 13, 2016 02:15PM
Quote
testcase
I would expect that, with your permission, that MRI can be electronically transmitted wherever a top surgeon is located for his / her perusal.

Of course it won't hurt to ask, but in my experience the only way my doctor will receive MRI scans is on disc sent through the mail, and this is coming from the National Institutes of Health (NIH) and going to another major hospital in the DC area.
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Re: Two words you never want to hear
Posted by: raz
Date: October 13, 2016 02:29PM
Quote
mikebw
Quote
testcase
I would expect that, with your permission, that MRI can be electronically transmitted wherever a top surgeon is located for his / her perusal.

Of course it won't hurt to ask, but in my experience the only way my doctor will receive MRI scans is on disc sent through the mail, and this is coming from the National Institutes of Health (NIH) and going to another major hospital in the DC area.

Before my surgery, I got copies of all the tests on CD/DVD so we could bring them to surgeons we were interviewing.

They're legally your records. You're entitled to them.



--------------

Embarassing myself on the Internet since 1978.
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Re: Two words you never want to hear
Posted by: mikebw
Date: October 13, 2016 02:31PM
Quote
raz
Quote
mikebw
Quote
testcase
I would expect that, with your permission, that MRI can be electronically transmitted wherever a top surgeon is located for his / her perusal.

Of course it won't hurt to ask, but in my experience the only way my doctor will receive MRI scans is on disc sent through the mail, and this is coming from the National Institutes of Health (NIH) and going to another major hospital in the DC area.

Before my surgery, I got copies of all the tests on CD/DVD so we could bring them to surgeons we were interviewing.

They're legally your records. You're entitled to them.

Indeed. I am able to request copies for myself and I can have them sent anywhere. It is just not as easy as "emailing" a set of images to another Dr.
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Re: Two words you never want to hear
Posted by: Microman
Date: October 13, 2016 04:01PM
You were hoping to get an answer and some sort of completion to you situation. And because it is you little girl, that magnifies it.

You are correct, all could have been handled faster and smoother via new digital communications.

Find out , if it will help to call everyday, asking if there are any cancellations, without being a nuisance.

Good luck
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Re: Two words you never want to hear
Posted by: rgG
Date: October 13, 2016 05:43PM
Not much to add except it is always harder to deal with something being wrong with your child than something being wrong with yourself.

I'll bet they will be able to work you in, since there are always cancellations, but I know how frustrating the waiting can be.

Best of luck to your family and your little girl.





Roswell, GA (Atlanta suburb)
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Re: Two words you never want to hear
Posted by: space-time
Date: October 13, 2016 08:01PM
I don't know, but this seems a little selfish to me.

You should appreciate the doc was honest and referred you to a better doc. Time is just that, time. Your daughter deserves the BEST care she can get, because sometimes these things cannot really be repaired once things go wrong. Better make sure it goes right the first time.

Once again, be happy and good luck.
(and sorry of the first line offended you, it wasn't meant like that).
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Re: Two words you never want to hear
Posted by: IronMac
Date: October 13, 2016 10:03PM
Not related but I would still stay off trampolines.
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Re: Two words you never want to hear
Posted by: bazookaman
Date: October 14, 2016 08:30AM
Like I said initially. I am totally fine with being referred to another doctor who in turn refereed me to ANOTHER doctor. I want my daughter to have the best care.

What I am NOT fine with is why in the world did I have to be referred to doctor number one in the first place??? Why not just skip to the end??? Like I said, he took one look at her MRI slide and diagnosed her and referred her to the other doc. He essentially told us "This is what's wrong with her. This is not something I'd want to tackle. I'm going to refer you to someone else better suited."

My whole point is, why did we need to be there for that?

Also, time is of the essence. Yes. We are on a list. My wife will call every week to check on cancellations. Even though being on the list, they should call us. Regardless, we need to see this new doc. THEN when she confirms what the other doc said. And the other one before that, we need to schedule surgery. THIS year.

If the consultation is not until December 7, that doesn't leave much room to get surgery scheduled. I'm assuming since it's so hard to get an appt with her, it's probably equally as hard to schedule surgery with her. Our insurance renews in January. With all the doctor visits, plus x-rays plus MRIs she has reached her deductible. In the new year, all that @#$%& resets and we start from scratch. We cannot afford that.

So yes. I am annoyed that time was wasted with this unneeded intermediate appointment.







Edited 1 time(s). Last edit at 10/14/2016 08:34AM by bazookaman.
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Re: Two words you never want to hear
Posted by: Speedy
Date: October 14, 2016 09:08AM
No matter what, your daughter will need more medical care after the surgery so don't sweat a deductible you would end up spending on follow-up care like physical therapy. Go with the flow.



Saint Cloud, Minnesota, where the weather is wonderful even when it isn't.
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Re: Two words you never want to hear
Posted by: JoeBob
Date: October 14, 2016 07:35PM
Check with the ortho docs at UNC and Duke- they may have an earlier opening than at Baptist, if that is where you are going.
MRIs CAN be transmitted electronically, the hospitals in the Research Triangle area have done this since 2002 or so.
It can be done- WakeMed, Duke, UNC and Rex have shared imaging for over a decade.
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Re: Two words you never want to hear
Posted by: datbeme
Date: October 16, 2016 12:37AM
We've been through similar "handoffs" with orthopedics (for children a few years older), and all I can say is that finding the right person is well worth the added wait. Please continue to your homework, but if you are contemplating surgery, I don't think you'll regret a few months of extra time if it means getting the best care.
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