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Anyone on the forum dealing with chronic kidney disease?
Posted by: stephen
Date: August 09, 2021 08:36AM
I've just been diagnosed in the last few months. Appears to be stage 3b. I feel perfect, zero symptoms.

The good news is I've been walking 2-4 miles a day and have lost 20 pounds. After four months my GFR is stable and even improving ever so slightly.

I'm watching my intake of animal protein and potassium.

I wouldn't normally post my health adventures on a forum, but

a) we've all been on this journey a while
b) this tends to be an age group who might encounter this sort of thing
and
c) we are a smart, inquisitive sort of people.



Edited 1 time(s). Last edit at 08/09/2021 08:37AM by stephen.
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Re: Anyone on the forum dealing with chronic kidney disease?
Posted by: mattkime
Date: August 09, 2021 09:08AM
My mother in law is dealing with it. You are doing much better than she is. Such behavior changes and open communication with doctors will go a long way.



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Re: Anyone on the forum dealing with chronic kidney disease?
Posted by: cbelt3
Date: August 09, 2021 09:15AM
It sounds like you’re taking the right steps to help your body.

My mother has apparently been dealing with it undiagnosed for several years, and it may have started a pretty bad sequence of events which put her in long term care. She is 85.

An early catch and a good approach should help you a lot. Best of fortune for you, sending healing vibes your way…
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Re: Anyone on the forum dealing with chronic kidney disease?
Posted by: rgG
Date: August 09, 2021 09:35AM
Sorry to hear that, but glad things seem to be looking better.
I can't offer any advice, which I guess is a good news/bad news kind of thing.





Roswell, GA (Atlanta suburb)
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Re: Anyone on the forum dealing with chronic kidney disease?
Posted by: Speedy
Date: August 09, 2021 09:43AM
You are doing what you can but you may need a biopsy to determine what is causing your renal failure so as to better prescribe a treatment. Ask your doc about fish oil supplements. Drink lots of dihydrogen oxide. Creatinine and CrCl are certainly the best indicators of renal function.

(Daughter had renal failure at birth, is now 31 and 24 years post-transplant. Father, age 93, was experiencing elevated creatinine due to renal reflux. Now he has a urinary catheter to make certain he is draining his bladder fully, and his creatinine decreased.)



Saint Cloud, Minnesota, where the weather is wonderful even when it isn't.
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Re: Anyone on the forum dealing with chronic kidney disease?
Posted by: DavidS
Date: August 09, 2021 02:43PM
As a primary care physician, you are doing well from what you've told us. The key is to prevent it from worsening. Weight loss, diet changes, taking your medications, avoiding NSAIDS, keeping your blood pressure under control, etc. are key. Keep up the good work.

You are also in Atlanta, right? It sounds like you have a good medical team, but feel free to send me a private message if you have any questions or need a Nephrologist recommendation.
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